Hello! It's been a busy end of summer. I moved, started a new job, and began the back to school hustle with Sophia. Momma is tired. I did my best to get us off to a great start and work out the kinks. I was very conscious of my limits and listened to my body … Continue reading Purposeful Pause
Every parent deserves a break. I mean every parent does their best to keep their child safe, happy and cared for. Yet, when your child’s care turns into a 24-hours around the clock shifts alone its exhausting. Like new baby exhaustion, except when your time Is done watching your child you have to get up … Continue reading Moment of TRUTH
This weekend was another milestone for Sophia. We went to the mall without her wheelchair. What an emotional experience it was. I feel incredibly proud of her, making her way down the foyer just holding my hand. I was aware of everything around us. I wanted to protect her from onlookers and people who walk … Continue reading Mall Gladness
Life throws curves our way daily and the choice is yours to respond radically with solutions, or in panic and despair. This happened to me this week with a situation I didn’t anticipate. I had an interview set for 5PM on Monday, the time which my daughter is usually picked up from the bus by … Continue reading Oh, The Places We Will GO!
Excuse the delay in writing, I’ve been dealing with medical mayhem of all sorts for my daughter. From getting approved for this medicine, to getting rejected for support and care. It’s been exhausting to say the least. I know every parent taking care of a child has this responsibility and it can be exhausting. I … Continue reading Medical Advocate Blues